The Drehers reach Everest base camp
I think about how miraculous it is that Tonya, that same woman who battled breast cancer 12 years ago, has now taken 4 teams to Everest Base camp.
A New Year
A brand new year always brings with it new possibilities in our lives and the hope of potential new treatments for DMD. But, as Gus’ mom, I just see one more year that has passed without a cure.
The Inverted World of Duchenne Muscular Dystrophy
A friend of mine once said of his DMD boy, “It’s as if my son is a perfect ice sculpture of himself and I desperately want to stop him from melting…” We both knew, however, to complete the metaphor, that we can’t simply put our sons on ice – they are boys who want to play in the sun.
The DA Meets!
The Duchenne Alliance holds a groundbreaking meeting on DMD, ignites revolution in biomedical funding.
Gus Turns Six – and the Balancing Act
Gus turned 6 yesterday and his disease reminded me that each of those memorable moments are rare and shimmering and beautiful.
A Letter of Thanks
I am writing in response to the Souhegan Saber football team’s game on October 7th that served as a fund-raiser for the Hope for Gus Foundation.