Jill said she’s honored to have participated in the trek. “I’m grateful to get the word out about Duchenne and to share this experience with others who we

That is the point of the Everest to End Duchenne fundraiser, said Tonya Dreher, Gus’ mother and director of Hope for Gus. The hike serves as a reminder of the difficulties faced by someone with Duchenne on a daily basis.

The International Duchenne Alliance announced today that it will allocate $500,000 to Jerry Mendell, M.D. and Milo Biotechnology to support the first ever follistatin gene therapy trial for DMD.

Phrixus Pharmaceuticals, Inc. today announced that it has received $67,374 in sponsored research funding from a number of DMD parent organization through the DuchenneDashboard.

Halo Therapeutics, LLC, a clinical-stage biopharmaceutical company developing novel therapeutics for rare fibrotic diseases, announced today that it has received financial support totaling $1.1 million from 12 not-for-profit foundations, including Hope For Gus.

The Duchenne Dashboard is an innovative research grant management system that will facilitate an unprecedented level of collaboration among the many foundations, patient advocacy groups, and scientists dedicated to finding treatments and cures for Duchenne.