Amanda Becker is parent to two adult children: a 21-year-old daughter, and a 19-year-old son with Duchenne Muscular Dystrophy. She lives in Newburyport, Massachusetts and has been active in the Duchenne community since her son’s early diagnosis at the age of one. Amanda has been a passionate advocate for cardiac care and research in Duchenne and has a new interest in advocating for more post high school options for young people with DMD. Amanda serves on the Boards of the Hope for Gus Foundation and the JB’s Keys Foundation, and serves as a Coordinator and Advocate for the New England region for Parent Project Muscular Dystrophy. Amanda has also supported the Jett Foundation as a longtime Gal for Cal. Amanda is a graduate of Colby College and worked in technology sales prior to becoming part of the rare disease advocacy community.
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